Aiding the process

Sunday, 20th September 2009 by Julie

As many readers know already, Jonathan has some congenital deafness which mainly affects him (and a number of his relatives) in the right ear.  We’ve been aware of this for ages, and Tom wrote a post about it back in July 2007.

From the tests that Jon had at the time, the conclusion was that his left ear was perfectly normal.  However since then, we’ve been back to the local Children’s Hearing Centre several times and more recent tests have led them to revise this result.

Of course, testing with toddlers is far from precise(!), but as far as they can tell, Jon is not hearing the upper sound frequencies (the ones that give us all the soft “th”, “sh” and “es” sounds) at normal levels in his “good” (left) ear.  Since his talking was also coming on a little more slowly than one might expect, the consultant asked if we’d be interested in having him fitted with a hearing aid for his left ear.

Phonak paediatric kit

Image from Connevans Limited

Tom and I were both up for giving it a go, and within 10 days, Jon had received his new baby blue hearing aid courtesy of the NHS.  It came with a very impressive paediatric “care kit” (left) including all sorts of bits and pieces from battery tester and drying container, to decorative stickers and attaching cords.

It’s now about 2 months since we started with the hearing aid, and Jon’s been pretty good about it on the whole.  He doesn’t fuss about having it inserted in the morning (although post-lunchtime-nap he can be a bit more assertive about not wanting it), and he’s got over the phase where it got removed and dismantled whenever he felt the need for some excitement.

Everyone wants to know what difference it’s made, and naturally, it’s hard to tell.  Jon’s language definitely has come on since then, although who can say to what degree it has helped.  For reference, he’s now up to more than 50 single words and can say “Shhh!” with the best of them. :)

What has been interesting to see though, is how getting this hearing aid has suddenly boosted us into the government-sponsored program of special treatment for Jon.  It’s all optional of course, but we now get visited by a specialist speech therapist every other week (she’s lovely and comes from Westville!), and a teacher for hearing-impaired children on the the weeks we don’t see the therapist.

They’re both still in the assessment phase, but overall it’s great to have their added input on Jon’s speech development, and get tips on how to help him along.  Given the severity of the impairment of some of the children that they deal with, it’s hard not to feel slightly fraudulent over all the high-quality attention we’re getting for Jon’s minor problems, but they’re happy to give it, so we’re just enjoying the ride for now!

3 Responses to “Aiding the process”

  1. Andrew Says:

    nice to hear that they have such a great system in place to help and give you so much info. An audiologist/speech therapist from Westville used to work with me and now works in the UK……. mmmmm! She wouldn’t be called Sherryn Alright would she???

  2. julie Says:

    Goodness me – that’s just too much of a coincidence! But it definitely sounds like her – her maiden name was Albright if I recall correctly. And she went to the same primary as Tom & siblings and remembered them too. (We’ll be seeing her on Thursday, I’ll be sure to ask!) :)

    P.S. Tom’s broken his hearing aid – what’s the best thing to do with it? Bring it back to SA next year?

  3. Andrew Says:

    Wow – small world!

    Widex in UK is under the name P.C. Werth, and they are in London, Nightingale street/lane/road?? If you look them up and phone them, they should be able to tell you where to take it closer to your home, then it will be sent through to P.C. Werth for you, (that’s how we work in S.A. anyway).

    Otherwise he is welcome to bring it to S.A. if he wants to wait that long.

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